So, about 2 weeks ago the boys got a virus that turned into a nasty cough. It has since progressed into bronchitis and now pneumonia. As some (most) of you know, their compromised immune systems make it difficult to fight infection, so we have them on "prophylactic antibiotic" twice weekly as a "immune booster" of sorts. Basically, they take antibiotics on the weekends and spend the weekdays off.
Long story short, they aren't getting better. SO....they Specialists that we have been working with for almost 3 years have decided that we have done all of the tests that we can do and at this point, we are down to just a few alternatives. One of which was a test that was a little difficult to think about.
Thursday morning Nick and I took the boys to PHOP and did what was called a sweat chloride test for both boys. It was not at all painful. They hooked their right arms up to a machine that send a little (very little) shock (less than a few seconds) into their arms and caused them to sweat and then measured the levels. This test was to tell us if the boys had cystic fibrosis. Talk about anxiety. Thank God in Heaven, both boys tests came back the same day with NEGATIVE results!
AMEN!!!!
However, we still have no answer.
So, we are now going to see yet another Specialist (which will be a good thing!) and hopefully this will lead us down the right path. These poor little boys have had a rough start. I am so thankful every day of their lives that we are not dealing with SO much more than this, but even this is hard. We are so blessed to have an amazing support group of family and friends.
Here's a little mini diary from our day...we weren't able to get pictures of the actual test, but here's before and after pics!
Brotherly Love before their Tests Started!
Coleby being Camera Shy.
Finally smiling...not Mommy's finest hour, but the best shot of the boys!
Landen playing while we waited for Coleby to finish!
We will continue to keep everyone updated after today's visit!
Hugs! Then Milams :)
